http://vimeo.com/27206602
In other news, check out Edward's progress! Isn't he bomb.com?!! I think so! If we can keep getting progress on his feet then I will wait as many hours at Shriners as I need! Yes, more hours of waiting just to get recast. So not cool.
10th cast |
11th cast |
terrible pic but you get the jist |
I have come to remember why I like our town. I have gone more places then just Winco. We have been to the lake every weekend. Let me tell you, that is the reason we love where we are at. It is gorgeous and amazing to be on a floatation device with no cares in the world, if only for two minutes. Those two minutes are heavenly...
Pretty much physical therapy over here sucks. We had an OT appointment yesterday and she seriously just sat there. She hardly asked me any questions about Edward and she was so...just sucky. I think she had it in her mind that she could not do anything for him. I was sooooo frustrated with her that I almost started to cry during the appointment. We are going to try and get into the Guild School. Please pray that we can find amazing therapy for Edward. This first year is soo important. I am feeling very overwhelmed about it. *For the arthrogryposis mom's, how effective would another tendon release be? Are multiple releases helpful or a waste?
I really think God has a sense of humor. I laugh with Him anyways. I wanted to get pregnant Right away because I LOVED the newborn stage so much (well Harvey in general). Now, with Edward, he has been a newborn for months. He is only 8.9 lbs and he is almost four months old! Hahaha. Thank you Jesus? Yes, high-five.
seriously...to-die-for |
(Point of the story is that I need help finding the name of the song. I was so focused on not listening to it so I wouldn't cry.)
That is the cutest picture of Edward. We sure have enjoyed spending time with you at the lake and are glad you are getting some relaxing time in on the water. Your kids are both adorable and snuggly! ~Marissa
ReplyDeleteLOVED your video!!!! Hearing Edward laugh brought tears to my eyes...he is so adorable! Great to reconnect with you this morning, will talk again soon :) -rach
ReplyDeleteWhile I am not a parent, I know many babies/ kids with arthrogryposis who've had multiple achilles tentomies to correct or re-correct their clubfoot. Here is an article about a "modified" ponseti method of AMC feet. The "modification" is basically that 2 achilles tentomies need to be done on some kids to achieve full correction with just ponseti method serial casts (versus the full release of the foot which involved releases all the tendons on the posterior and medial parts of the foot) http://www.springerlink.com/content/d78t252l7775047l/ (if you want this article in full let me know!)
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