Tuesday, August 9, 2011


Edward is To-Die-For! (I can't figure out how to post to blogger so here is the link.) Watch and smile!


In other news, check out Edward's progress! Isn't he bomb.com?!! I think so! If we can keep getting progress on his feet then I will wait as many hours at Shriners as I need! Yes, more hours of waiting just to get recast. So not cool.
10th cast
11th cast
terrible pic but you get the jist
Oh! Guess what! Edward won a mamaRoo!!! Isn't that amazing? I told my story when I was about 29 weeks prego and two weeks ago I received an email saying that I/Edward had won the mamaRoo! Yay for Edward! It is awesome and Edward loves it!
I have come to remember why I like our town. I have gone more places then just Winco. We have been to the lake every weekend. Let me tell you, that is the reason we love where we are at. It is gorgeous and amazing to be on a floatation device with no cares in the world, if only for two minutes. Those two minutes are heavenly...

Pretty much physical therapy over here sucks. We had an OT appointment yesterday and she seriously just sat there. She hardly asked me any questions about Edward and she was so...just sucky. I think she had it in her mind that she could not do anything for him. I was sooooo frustrated with her that I almost started to cry during the appointment. We are going to try and get into the Guild School. Please pray that we can find amazing therapy for Edward. This first year is soo important. I am feeling very overwhelmed about it. *For the arthrogryposis mom's, how effective would another tendon release be? Are multiple releases helpful or a waste?

I really think God has a sense of humor. I laugh with Him anyways. I wanted to get pregnant Right away because I LOVED the newborn stage so much (well Harvey in general). Now, with Edward, he has been a newborn for months. He is only 8.9 lbs and he is almost four months old! Hahaha. Thank you Jesus? Yes, high-five.
So, I had to have a MRI for Edward when he was still in utero. It was four days before he was born. I was alone and they sat me on the table and wrapped me with blankets. They put ear-plugs in and gave me headphones so I could try and relax. They asked me what station I wanted and I requested a Christian station. The table moves me into the claustrophobic tube and the music starts playing. This song is playing about his wife who is pregnant and the baby was not supposed to make it but does...bla bla bla. I remember I started to cry for like a second but stopped because I was not supposed to move. So I scrambled to fix my mind on something else as this song was playing. I finally had to request another station. I requested a reggae station. hahaa. (If anybody has any idea on what the name of that song could be, please let me know!) I remember driving home and laugh/bawling at the irony of what just happened. Then docs decided that Edward needed to get out now and so I had him four days later.
(Point of the story is that I need help finding the name of the song. I was so focused on not listening to it so I wouldn't cry.)


  1. That is the cutest picture of Edward. We sure have enjoyed spending time with you at the lake and are glad you are getting some relaxing time in on the water. Your kids are both adorable and snuggly! ~Marissa

  2. LOVED your video!!!! Hearing Edward laugh brought tears to my eyes...he is so adorable! Great to reconnect with you this morning, will talk again soon :) -rach

  3. While I am not a parent, I know many babies/ kids with arthrogryposis who've had multiple achilles tentomies to correct or re-correct their clubfoot. Here is an article about a "modified" ponseti method of AMC feet. The "modification" is basically that 2 achilles tentomies need to be done on some kids to achieve full correction with just ponseti method serial casts (versus the full release of the foot which involved releases all the tendons on the posterior and medial parts of the foot) http://www.springerlink.com/content/d78t252l7775047l/ (if you want this article in full let me know!)