Edward had a difficult weekend too. Last night, for example, it took me two and a half hours to calm him down and get him to sleep. He has these times where he is just soo uncomfortable and nothing I do seems to help him. By the end of the two and a half hours, I was ready to freaking scream.
Today we have a couple of appointments. One is with the geneticist. We will discuss his DNA results. I know what they are going to tell me, but I don't want to hear it. That will make it final. I think I live in an altered reality. This, unfortunately, will force me to deal with the fact that my baby has a syndrome. I hate thinking, writing, or saying that my little baby has a 'syndrome.' I will get over it, I hope. I like my altered reality. It is like I hear all these bad things but they just pass over me, nothing ever really hits me, until it does. Does that make any sense? Maybe it is not an altered reality. Maybe it is something I do to help me get through the days. But, I have soo much to be thankful for. I really, truly do. I love my boys so very much.
|My baby in all his casting/splinting glory! (poor thing)|