|major love butt!|
|couldn't you just die?!|
Then, this is terrible, but I was playing with Edward on a pillow and Harvey had just woken up from his nap. I left Edward on his pillow and went up stairs to make Harv some lunch. I came back down and Edward had rolled off his pillow and gone face first onto the couch. I freaked. His eyes were closed and his breathing was slow. I ran upstairs and opened the freezer door to maybe have the cold air stimulate him. He opened his eyes and slowly returned to normal. Ugh...that was terrible. He is fine, thankfully. But you can imagine. I just didn't think he could go anywhere from his pillow because he generally can't. I was horrified and it took me a long while to calm down from that. Nightmares.
This last Wednesday we went back to Seattle for the Arthrogryposis clinic. It went sooo well! My husband and I felt soo encouraged afterwards! We had like eight appointments for him including one with Dr. Hall. Yes, we got to meet the famous Dr. Judith Hall! She was awesome! She loves arthrogryposis kids and what she does! The biggest thing I got from her was to enjoy Edward as much as possible now, then after this year I can study-up to become a muscle expert. She was super sweet. She also said that we should do whatever Dr. Song says in regards to Edward's feet and hips because he is the best. Done. He will have hip surgery and feet surgery at the same time come Jan/Feb. We feel really good about it. It just felt sooooooooooooo good to be back at Children's! We saw Edward's old physical therapist and she was so sweet and she missed Edward! OOhhh..I miss Children's. It was just a good day! We were not as affected by the 'look' of arthrogryposis as we were the first time. I was, yet again, reassured that this is, in all actuality, no big deal. I am sooo lucky to be Edward's mom. Here comes the sappy...
Seriously. I was telling Adam all this. I feel sooo unbelievably privileged to be Edward's mom! Instead of why me in a feel sorry for myself kinda way, I have been asking Jesus why me in a humbled, elated way! Of all the things that could happen to a baby/pregnancy, I lucked out. Edward is such an awesome, awesome little boy! This is the thing, I feel God's love through Edward. It is the honest truth. I know this is all sappy crap but man, Edward was no accident. (That is what my Christian minded physical therapist said! I'm so happy with him!) God specifically gave me Edward and I don't know why me but I can tell you that I feel sooo honored that he did! I would go through all the pain 10 times over just to have him and feel Jesus' grace through him. Not kidding, mark my words, Edward is going to play the piano and have an insatiable love for Jesus! When I look at Edward, I feel like I can see the boy he will become. Man, I love him!!! I am the luckiest and all you guys aren't! haha...humbled, right?! But I literally have a gift from God.
|ah! my sweet love face!|
|out of it...on some meds|
|sleepy after surgery|